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Lily's Story: A Micro-Preemie's First Year

October & November 2006 - Lily Comes Home
Prior Segment: Lily's Health Gets Worse

Looking back now, November went by in a blur. Lily needed to be fed every 2.5 to 3 hours. She still couldn't breastfeed, so I had to use an electronic pump between her feedings. Somewhere in there I found time to sleep a few mintues.

I was exhausted.  I occasionally did fall asleep. I know you are not supposed to sleep holding your baby, but being only human, it happened sometimes. Lily slipped from my grip and slid down my leg to the floor one day.  I was sure I damaged her, but she didn't even notice.  Both Jed and I checked her and she was fine.  After that I would tuck Lily inside my shirt after every feeding, just to be on the safe side.  I've never dropped her again.

Lily needed extra oxygen while feeding. The pulse oxometer alarm went off often. We had to replace the batteries every day. We bought a battery charger to cut back on the cost.

I still hum at Lily to encourage her to breathe. It is so adorable that she tries to hum back. In reality it is more of a moan, but it still gets her to breathe. Hummm, Hummm, Hummm...breath.... and over again.

I sleep on the floor next to the bassinett. Jed is back at work and I am alone a lot of the day with Lily. It is very nice when he gets home and I can rest for one feeding.

Next Segment: Our First Holidays at Home.


Lily's Story Calendar

Prior To Lily - Something Is Wrong - Time in the NICU - Lily's Health Gets Worse - Finally Coming Home -
December 2006: Our First Holidays - January 2007: Starting A New Year - February 2007: Still Under Quarantine -
March 2007: A Baby On A Plane - April 2007: RSV Season Is Finally Over - May 2007: Spring and Song Bird Lily -
June 2007: A Visit with the Neurologist - July 2007: My Baby Turns One !!! -

An Update

You can also see a video of Lily below
or for more videos see www.youtube.com under search Micro-Preemie Lily


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Lily of My Heart
is licensed in the State of Wisconsin
PO Box 763
Plover, WI 54467

Contact us at Lilyofmyheart@aol.com

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